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Archive for November, 2006

Our First Check!

Wednesday, November 8th, 2006

Today I am proud to announce that we received the very first donation to the MSMF!  It is a great start, and I hope they keep coming.  Remember, every dollar counts.  Even if it’s only $5 or $10, it helps.

You can find thie information at www.MSMobilityFoundation.org. You can also help by doing ALL of you holiday shopping - or even some :) - at www.bathandbodyplace.com.

But also keep in mind that it is just as important to our success, if not more, that you continue to visit our site, sign up for the monthly newsletter - First Edition Coming Soon! And tell everyone about the Foundation

Thank you all for your support! 

Chemo

Tuesday, November 7th, 2006

I had my chemo, and the typical side effects as well. But four days out, I’m felling pretty good.

I am alert when I wake in the morning, but tire easily, and I am having a bit of MS pain. I always get it after chemo or during exacerbations.

Very nauseaus. Happy Halloween!

Rigors? ADR? (Adverse Drug Reaction)

Monday, November 6th, 2006

Saturday night, about an hour after I took my shot, I started to get really cold.  I took my temperature, and it was 97.0.   I got into some warmer P.J.’s, and by the time I got back to the kitchen table, i was shivering and shaking.

The shaking quickly turned into convulsions.  The muscles behind my shoulders and up the sides of my neck cantracted, and the pain was excrutiating.

The soles of my feet and the palms of my hands got pins and needles and then went numb.  Next was my face.  I had trouble breathing, like my throat was being strangled.

After 15 minutes of this episode being severe, my husband called 911.  I though I was having a seizure, though I know little about them.  By the time EMS arrived, it was starting to subside.  My pulse was 165, my blood pressure was 94/52.  They stayed as I described the experience, and by the time I was through, I was fine.  My pulse was 96, and blood pressure 104/67 - I am always 110/70.

I decided to opt out of an ER visit at 11:00 pm on a Saturday night.

After speaking to my I.C.U. nurese friend and my neuro, it was one of two things.  Rigors or , I nicked a vein when I gave myself the shot.

Either way, it was what they call an Adverse Drug Reaction or ADR.  It’s not an allergic reaction - apparently there’s a difference.  

But that’s great news because it means I can stay on Copaxone!

My neuro is giving me an anti-hystemine to “pre-medicate” - take the pill before the shot, and hopefully it will prevent it from happening again!