I am on Copaxone, and the injection sites are horrible.  I tried using hydrocortisone cream - prescription strength, essential oils, icing it - it does help immediately after the injection.

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I know I am plugging the site admittedly for the Multple Sclerosis Mobiliy Foundation , but these products have honestly been helpful to me for years, even when I was on Betaseron.

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So, yesterday I saw both my nerologist and my oncologist.  I saw my neuro first, and he strongly felt that I should go througha fourth pulse of Novantrone for two main reasons.

First, he felt that with my MS acting up the closer I got to my next pulse, I still needed Novantrone.

Second, and a very good point, I thought, was that I “I now had six weeks of the Copaxone in me, and with a big, fresh pulse of Novantrone, it would hopefully ’shock’ my system out of having MS - so to speak.”

Needles to say, I am going to get the next dose of chemo on the 27th.

So, tomorrow, I see my neurologist first, then my oncologist later on. I’m about 33 shots in.  The last time I spoke to my neuro, we had a difference of opinion.  I am due for more Novantrone on October 27.  I didn’t want to take it and have an MRI in November.

He wanted me to have the fourth pulse, and do an MRI in January/February.

The improvement is remarkable, without a doubt.  But I still do much better when I take my other MS meds.  I’ve had a couple ecacerbations of spasticity, and the tizanadine and baclofen have been working on an “as needed” basis.

It’s mostly the pain and fatigue that get to me, and I definitely have my limits.  I am still taking Lyrica  and amphetamines regularly.

I find that these mini exacerbations are directly linked to how much I push myself, and the symptoms last at most 2 days, including the day that I pushed it.  So tomorrow, I am going in with an open mind.  My husband wants me to take the fourth pulse as well.

Then, in the afternoon, I see my oncologist.  Between the two, we should be able to make a decision.

So, Friday night we went to see Josh Blue, Ty Barnett, and Chris Porter. We watched the whole season, and were eager to go - we had seats in the fourth row!

They had a joke contest before the show started, and I won two tickes to see The Cars! And…as if that weren’t enough…

My dear hubby took down this giant billboard advertising the concert with a giant pic of Josh Blue on it! I got all three to autograph it, and Josh Blue even drew a devil on his face.

They are absolutely hilarious - even more so when uncensored. We saw George Carlin, second row, same venue, and they were SO much funnier.

They told us it was their first performance, and that they were picking up Roz soon. If you have the opportunity to see them, I highly reccommend it!

I contacted the clinical trials department at Teva today. I got the information from www.clinicaltrials.gov. I spoke with a very nice woman who explained to me a bit about clinical trials. For instance, the Copaxone/Novantrone trial is in Phase IV, the final stage before it is submitted to the FDA for approval.

She said that it sometimes takes years before the FDA makes it’s decision, and it is only then that the data is released.

Okay, fine… But they managed to approve Tysabri rather quickly. Just saying… She was unable to get me in touch with the director fo clinical trials for Teva, the lady managing the staudy, but she took a message from me and said that she would have my local Teva rep call me. I haven’t heard anything yet, so I plan on calling the clinical trials department again soon.

I don’t know if it was a “slip,” or if this is public information, but she did say that , “Teva is about to start the same Copaxone/Novantrone combo therapy in people with relapse/remitting MS.”

This is, needless to say, amazing news. It is, as far as I know, the closest thing we are getting to an actual cure. This came about because she was kind enough to take the time to talk to me and answer a few questions I had. I asked her why the study says that it is for R/R MS when the FDA has only approved the use of Novantrone for secondary progressive. She explained that the FDA has only approved the use of Copaxone in RRMS, and, therefore, they could only “accept RRMS” with the use of Copaxone with Novantrone, knowing full well that those on Novantrone were not RR.

Basically a semantics game with the FDA trials, but that is what led to her telling me about Teva doing trials with the combo therapy in RRMS patients. Very exciting news!

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So, I am 18 or 19 shots in, and I feel terrific. I have been very busy.

We have been working so hard on the website www.MSSupportNetwork.com, as well as the Foundation site and the red tape.

But we are up and running, and a legitimate non-profit. So, please visit the websites often, sign up for our monthly newsletter, make a tax deductible donation if you can, and you can also do all of your holiday shopping at www.bathandbodyplace.com. ALL - 100% of proceeds go to the MS Mobility Foundation.

All of the products there are all natural, affordable, quality products that are guaranteed. So pamper yourself and the ones you love while contributing to a GREAT cause. Thanks in advance!

Remember to tell your friends. We NEED to hear your voice to get the funding we need to start making people mobile and helping to change the world one talented person at a time!

“Every man can make a difference, and every man should try.” J.F.K.

Okay, they are one of my favorite bands, and I have never seen them live. When I got our great tickets, I arranged for wheelchair seating - I was in one. But I am sooo not going to this concert in a chair. Plus, we have tickets with my best friend and her hubby.

We decided to tell the usher that the person in the chair couldn’t make it!

I danced and rocked and sang to EVERY song they performed - all night long. AND, I didn’t pay at all for it physically.