Recently, on the MSSF forums, there has been a lot of discussion regarding employment and all the lovely things associated with it.  It is definitely an issue.  Quite frankly, I am surprised at myself for not thinking of it myself as my background is in HR!

There are so many facets to this topis that it is impossible to cover it all under one post.

Welcome my new category…  MS and Employment!

Thank you!  Thank You! Thank you!

The MS Mobility Foundation recieved a very generouos donation of $750 specifically for the fee required by the IRS  for tax exemption!  A BIG FAT THANK YOU - you are angels, and you know who you are!

That brings us one BIG step closer to being able to award money.  We are currently looking for a donation of $3,000.  This money will be used to puchase brochures that we will mail to Neurologists that focus on treating MS.

This will not only get more donors for awards, but it will advertise our website and give support for so many that need this priceless service. 

Please know that we are a completely volunteer non-profit, and every bit of help is needed.

Thanks in advance for considering us for your charitable contributions!

Today I am proud to announce that we received the very first donation to the MSMF!  It is a great start, and I hope they keep coming.  Remember, every dollar counts.  Even if it’s only $5 or $10, it helps.

You can find thie information at www.MSMobilityFoundation.org. You can also help by doing ALL of you holiday shopping - or even some - at www.bathandbodyplace.com.

But also keep in mind that it is just as important to our success, if not more, that you continue to visit our site, sign up for the monthly newsletter - First Edition Coming Soon! And tell everyone about the Foundation

Thank you all for your support! 

I am on Copaxone, and the injection sites are horrible.  I tried using hydrocortisone cream - prescription strength, essential oils, icing it - it does help immediately after the injection.

 I also heat the injection spot 5-10 minutes with the Herbal Heating Pad from www.bathandbodyplace.com , and the Healing Balm is the only thing that soothes the injection site.

I know I am plugging the site admittedly for the Multple Sclerosis Mobiliy Foundation , but these products have honestly been helpful to me for years, even when I was on Betaseron.

My husband and I are donating 100% of ALL profits from the site  to the MSMF.  We are determined to make people mobile.

We guarantee all products, and the Organza Gift Sets are the perfect gift for EVERYONE.  Plus, you are supporting a good cause too!  Please check it out! www.bathandbodyplace.com Thanks!

So, I am 18 or 19 shots in, and I feel terrific. I have been very busy.

We have been working so hard on the website www.MSSupportNetwork.com, as well as the Foundation site and the red tape.

But we are up and running, and a legitimate non-profit. So, please visit the websites often, sign up for our monthly newsletter, make a tax deductible donation if you can, and you can also do all of your holiday shopping at www.bathandbodyplace.com. ALL - 100% of proceeds go to the MS Mobility Foundation.

All of the products there are all natural, affordable, quality products that are guaranteed. So pamper yourself and the ones you love while contributing to a GREAT cause. Thanks in advance!

Remember to tell your friends. We NEED to hear your voice to get the funding we need to start making people mobile and helping to change the world one talented person at a time!

“Every man can make a difference, and every man should try.” J.F.K.

My neuro had some concerns such as getting an opportunistic infection like when Tysabri first hit the market. Opportunistic infections happen when you have like no immune system, and often, people on combo therapies are the doors that answer to that opportunity. He was also concerned that I hadn’t tolerated Copaxone very well the first time I was on it.

I told him, yes, but at that time, Copaxone was making me sicker than I was.

He was also concerned that there was no data for him to refer to. Teva, the makers of Copaxone, are currently doing a 4 year FDA study, but they aren’t even close to revealing any data. He said it was up to me, and I say YES!

Hello World! Welcome to the MS Blog. My name is Jill, and I would like to give you a little history about myself. On the 8th it will be my 31st birthday, and I am banking on it being a very good year… I should certainly have one coming.

I was diagnosed with Relapse Remitting Multiple Sclerosis in February of 2002, though I had my first documented exacerbation when I was 19.

I had a horrible neurologist, and was puy on Copaxone along with a multitude of other drugs. I did not react well to the Copaxone. I had all the rare side effects - and the common ones too. I had a falling out with my first neuro and stopped taking all MS meds. Basically, my primary doc took care of me, and would prescribe me steroids as needed. But my MS was progressing, and my primary doctor felt she could no longer manage my MS. I went to see another neuro who had NO bedside manner and made me cry. I asked my primary to find out who was the nicest and best neuro in town, and the same name kept coming up. I had to switch insurance carriers, and gave up my primary for my neuro. It was a match made in heaven with my neuro. He put me on Betaseron. I tolerated it well, but my MS was progressing rapidly.

I “traded” up from a manual wheelchair to an electric one. I knew I was going secondary progressive, and I knew that “pushing” myself would bring it on faster. I was looking at a difference of maybe a year.

But I had 2 small babies, and with the support of my husband, I chose to make the most of the meds available to mask my symptoms and live life to the fullest. The official diagnosis of secondary progessive came all too quickly. I was declining rapidly. Exactly one year ago this weekend, we were having dinner across the street at our neighbor’s house, and somewhere between the steak and cake, my legs just wouldn’t move. The hubby’s got my chair out of our garage, dusted it off, and made a makeshift ramp out of cardboard boxes and a baby gate. The steroids didn’t work, I lost control of my bladder, and by January of 2006, literally everyday I was progressing. I was told that chemo was my only option. That it would hopefully slow my progression and “buy” me a couple of years. I was told my only hope was a stem cell cure.

We couldn’t afford the vehicle modifications for my car, so, there I was, homebound with a 2 and 3 year old.

I could go on and on about what each of those days were like, not just for me, but my family as well. I also found that not only were there no resources for funding a lift and hand controls for my car, but there were very few resources for anything MS related. What recources that were out there were either out of date or limited, and I had to peacemeal ALL of it. My husband and I also saw the movie Robots. “See a need, fill a need!” And we did, and we are here!